SP’s journey with CF

As I sit down to share my story, I’m filled with a mix of emotions – sadness, hope, and determination. My name is Stephan Petrus Theron, and I’m 19 years old, living with Cystic Fibrosis (CF), a genetic disorder that affects my lungs, pancreas, and other organs. My journey began when I was just 21 weeks old, and my parents suspected something was wrong. After multiple tests and genetic analysis, I was diagnosed with CF, carrying two copies of the DELTA 508 mutation.

Growing up, I was a government patient, relying on the public healthcare system for my medication and treatment. My mother would accompany me to the CF clinic in Port Elizabeth every six months, where I’d receive my medication and treatment. However, over the years, I’ve experienced a significant decline in the availability of medication, making it challenging for me to manage my condition.

Recently, my parents made the difficult decision to opt for private medical aid, SizweHosmed, which covers some of my medication. However, the struggle to get approval for chronic medication is real, and the list of covered medication is restrictive. With Dr. Gebers, my pediatrician, no longer consulting at the Provincial Hospital in Port Elizabeth, accessing government scripts has become increasingly difficult.

That’s why I’m reaching out for help. I’ve discovered that Discovery Medical Aid offers a plan that covers CF, including the life-changing medication Trikafta. However, the monthly premium of more than R10 000 per month is unaffordable for my parents. We are able cover most of it but we need about R6000 pm to cover my out of pocket expenses and ensure I stay as healthy for as long as possible. I’m in urgent need of financial assistance to cover the yearly out of pocket costs of R72 000.

Having access to proper medical care and medication would be a game-changer for me. I could visit Dr. Gebers at his private practice, get my scripts on time, and manage my condition without the constant worry of medication shortages. I’m not just fighting for my health; I’m fighting for a better life.

If you’re reading this, I hope you’ll consider helping me. Your contribution, no matter how small, could bring me one step closer to a life free from the constraints of CF. Together, let’s make a difference and give me the chance to live a life that’s full of hope, promise, and possibility.