Super Samuel and Cystic Fibrosis

About the project

Our son Samuel is 6 years old, and at the young age of 10 months, Samuel was diagnosed with Cystic Fibrosis.

Cystic Fibrosis (CF) is a genetic hereditary condition, which is life-threatening. CF affects the cells that produce mucus, sweat and your digestive juices.

This causes CF patients’ mucus to become thick and sticky.

It also mostly affects your lungs, pancreas, liver, intestines and sinuses.

The mucus blocks the lungs, and this causes breathing problems, making it easier for bacteria to grow in the lungs.

Life-changing tablets have been formulated. Trikafta is a highly effective drug and studies have shown that patients using Trikafta have improved their lung function by up to 20%, and have the ability to function like “normal” lungs.

A generic version, Trixacar, is only available in Argentina at a 10th of the price, but it is still unaffordable for us.

The reason we are so desperate to get our hands on this medicine is the fact that Trixacar can extend our son’s life by up to 20 years.

Our biggest dream for Samuel is that he will have the opportunity to breathe normally. He has great difficulty breathing because of the thick and sticky mucus.

The medication is lifelong. Unfortunately, there is no cure for Cystic fibrosis but Trixacar is seen as the “miracle drug”, because it addresses the cause of the disease and prevents the secondary symptoms of Cystic Fibrosis.

Thank you for sharing our cause.