CF can be part of a beautiful story

At Breathtaking NPC, we believe that amazing stories and victories can be born our of our CF journeys, if we choose to not give up hope, and look for the treasures hidden along this very rocky journey. Noelle Booyse is the mother of one of our beneficiaries, and she has written a book about their experiences. We are delighted to share the details of this book release with you:

📖 New book Release 📖

Noelle Booyse’s book ‘Finding God in the Storm’ is not a story told from the other side of the storm, it is written in the storm.

Shortly after birth, Noelle’s little boy was diagnosed with Cystic Fibrosis. Since then, every single day has been a gift of breathing — a gift received, but never without sacrifice.

On 19 August, we gather at Exclusive Books Waterfront to honour a woman who has learnt to breathe through the breaking, and to trust the Source behind her strength.

In Noelle’s own words:
“This book is our testimony.

Of fear and faith.
Of grief and grace.
Of a God who showed up in every storm.

I pray parents with a child facing a life-threatening chronic illness like CF read this.
I pray for the ones feeling alone, asking “God, are You here?”

Yes. He is.”

“Finding God in the Storm of Cystic Fibrosis” is coming out on 19August 2026.

RSVP for the book launch

Family Story 1: Baby Luke

6-Month-old baby, Luke, was diagnosed with a rare gene mutation of cystic fibrosis (class 1), a life-threatening genetic disease affecting his lungs and digestive system. Despite the challenges, Luke is a fighter, and we’re determined to give him the best possible life.

We were able to donate Luke and his mom some much needed items via the 65Roses4cf campaign

Update from his mom on 15 March:

“Baby Luke is currently battling some internal bleeding and needs to go for a scope tomorrow to see where it’s coming from 😔. It’s been tough taking him to doctors’ appointments and the hospital without a proper way to carry him.

That’s why we donated him a pram, to make things so much easier.

Thanks so much for your support – it means the world to us🙏

We’re grateful for your love and support ” 💜